Brooke9 months ago
Thank you for the clarification, Jen! I agree that it is more important to explain the difference between CFS and ME and how most CFS patients don't have ME, etc than to create a film where the term CFS isn't used at all. In fact, I think any thorough film about ME needs to do that, although I also believe that can and should be done without allowing misuse of the term CFS in the film. I am desperately hoping those being interviewed will be asked to use the correct term, ME, in the film so as to preclude confusion, because allowing them to do otherwise would contradict the truth about it being a whole different diagnosis. I am glad you at least understand the difference and plan to explain it in the film. I will gladly offer some financial support knowing this, and keep my fingers crossed that this film is indeed careful about how interviewees and doctors use terminology in order to represent this illness correctly. Thank you for putting sooo much of your limited energy into raising awareness through this film. I know you must be paying a terrible price physically, and I want you to know it is recognized and appreciated for the sacrifice that it is. Best of luck as you move forward!