Jen Brea5 months ago
Hi Brooke. Yes, this is that film. There are some folks who would like us to exclude every patient or researcher who has ever used the term "CFS." Or edit out every mention of the word. I do not think that is right or realistic. As long as we, in both the narrative and in our animated "explainer" sequences, do a good job of telling the history of ME (much older than CFS!), the difference between ME and CFS, etc., then I think everything will be in the end, quite clear--more clear than if we had tried to hide the mess. Much more important than presenting a too-neat version of reality is to give people the context and the critical lens through which to discern and come to their own conclusions about the truth.
You can read more about my understanding of the illness here: http://blog.ted.com/2013/10/25/illuminating-an-illness-without-end-fellows-friday-with-jennifer-brea/