Perthes Kids Foundation aims to raise global awareness for children and families surviving Legg-Calve-Perthes Disease, in addition to developing research grants for new treatment methods, providing support for families, and promoting activities for children dealing with the disease.
Legg-Calve-Perthes Disease is a degenerative hip bone disorder (osteochondritis) that makes it painful to walk. It may not be life threatening, but it is life altering. As a child survivor of Perthes Disease, I spent a majority of my childhood in a cast, leg braces, and in a wheelchair. But I marched on through life to do amazing things despite my early physical challenges... like going on national TV and winning CBS' Survivor: Fiji in 2007, when I became the first unanimous winner in the history of the show, and which I dedicate my perseverance, humilility and determination to my experience with Perthes, first and foremost.