GOOD

Perthes Kids Foundation Builds Support For Survivors Of Legg-Calve-Perthes Disease

Perthes Kids Foundation aims to raise global awareness for children and families surviving Legg-Calve-Perthes Disease, in addition to developing research grants for new treatment methods, providing support for families, and promoting activities for children dealing with the disease.

Legg-Calve-Perthes Disease is a degenerative hip bone disorder (osteochondritis) that makes it painful to walk. It may not be life threatening, but it is life altering. As a child survivor of Perthes Disease, I spent a majority of my childhood in a cast, leg braces, and in a wheelchair. But I marched on through life to do amazing things despite my early physical challenges... like going on national TV and winning CBS' Survivor: Fiji in 2007, when I became the first unanimous winner in the history of the show, and which I dedicate my perseverance, humilility and determination to my experience with Perthes, first and foremost.


With great support from my family and friends I've never let Perthes defeat me as an individual. It is that support that also inspired me to establish Perthes Kids Foundation, to give back to families around the world dealing with Perthes Disease. Perthes Kids Foundation aims to raise global awareness for children and families surviving Legg-Calve-Perthes Disease, in addition to developing research grants for new treatment methods, providing support for families, and promoting activities for children dealing with the disease.

As the disease is typically found in 1 out of 12,000 children between the ages of 3-12, providing a support network for these children early on is critical. And so we started Camp Perthes, a one-week, overnight camp for boys and girls between the ages of 7-13, which just ended its third run. The Camp, which takes place in Florida, is the first and only of its kind in the world, and aims to promote confidence skills, social development, education and therapeutic activities where kids with LCPD can meet each other, in a fun and safe environment. Families travel from other countries just to attend. That's why, due to demand, we are organizing a Camp Perthes in Australia and the UK.

It is my hope that we can all connect with one another, help support each other and share our stories. Let's keep our kids inspired!

To learn more about Perthes Kids Foundation, I invite you to visit our website and Like us on Facebook.

Articles
via The Hill / Twitter

President Trump's appearance at the World Economic Forum in Davos, Switzerland was a mixed bag.

The theme of the event was climate change, but Trump chose to use his 30 minutes of speaking time to brag about the "spectacular" U.S. economy and encouraged world leaders to invest in America.

He didn't mention climate change once.

Keep Reading
The Planet
via David Leavitt / Twitter and RealTargetTori / Twitter

Last Friday, GOOD reported on an infuriating incident that went down at a Massachusetts Target.

A Target manager who's come to be known as "Target Tori," was harassed by Twitter troll David Leavitt for not selling him an $89 Oral-B Pro 5000 toothbrush for a penny.

He describes himself as a "multimedia journalist who has worked for CBS, AXS, Yahoo, and others."

Keep Reading
Communities

The Australian bushfires have claimed 27 human lives, an estimated 1 billion animals are feared dead, and thousands of properties have been completely decimated.

The fires were caused by extreme heat and dryness, the result of 2019 being the country's hottest year on record, with average temperatures 1.52C above the 1961-1990 average.

The area hit hardest by the fires, New South Wales, also had its hottest year on record, with temperatures rising 1.95C above average.

Keep Reading
The Planet