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Perthes Kids Foundation Builds Support For Survivors Of Legg-Calve-Perthes Disease

Perthes Kids Foundation aims to raise global awareness for children and families surviving Legg-Calve-Perthes Disease, in addition to developing research grants for new treatment methods, providing support for families, and promoting activities for children dealing with the disease.

Legg-Calve-Perthes Disease is a degenerative hip bone disorder (osteochondritis) that makes it painful to walk. It may not be life threatening, but it is life altering. As a child survivor of Perthes Disease, I spent a majority of my childhood in a cast, leg braces, and in a wheelchair. But I marched on through life to do amazing things despite my early physical challenges... like going on national TV and winning CBS' Survivor: Fiji in 2007, when I became the first unanimous winner in the history of the show, and which I dedicate my perseverance, humilility and determination to my experience with Perthes, first and foremost.


With great support from my family and friends I've never let Perthes defeat me as an individual. It is that support that also inspired me to establish Perthes Kids Foundation, to give back to families around the world dealing with Perthes Disease. Perthes Kids Foundation aims to raise global awareness for children and families surviving Legg-Calve-Perthes Disease, in addition to developing research grants for new treatment methods, providing support for families, and promoting activities for children dealing with the disease.

As the disease is typically found in 1 out of 12,000 children between the ages of 3-12, providing a support network for these children early on is critical. And so we started Camp Perthes, a one-week, overnight camp for boys and girls between the ages of 7-13, which just ended its third run. The Camp, which takes place in Florida, is the first and only of its kind in the world, and aims to promote confidence skills, social development, education and therapeutic activities where kids with LCPD can meet each other, in a fun and safe environment. Families travel from other countries just to attend. That's why, due to demand, we are organizing a Camp Perthes in Australia and the UK.

It is my hope that we can all connect with one another, help support each other and share our stories. Let's keep our kids inspired!

To learn more about Perthes Kids Foundation, I invite you to visit our website and Like us on Facebook.

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The problem with American Sign Language (ASL) is that over 500,000 people in the U.S. use it, but the country has over 330 million people.

So for those with hearing loss, the chances of coming into contact with someone who uses the language are rare. Especially outside of the deaf community.

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Looking back, the year 1995 seems like such an innocent time. America was in the midst of its longest streak of peace and prosperity. September 11, 2001 was six years away, and the internet didn't seem like much more than a passing fad.

Twenty-four years ago, 18 million U.S. homes had modem-equipped computers, 7 million more than the year before. Most logged in through America Online where they got their email or communicated with random strangers in chat rooms.

According to a Pew Research study that year, only 32% of those who go online say they would miss it "a lot" if no longer available.

Imagine what those poll numbers would look like if the question was asked today.

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"Few see online activities as essential to them, and no single online feature, with the exception of E-Mail, is used with any regularity," the Pew article said. "Consumers have yet to begin purchasing goods and services online, and there is little indication that online news features are changing traditional news consumption patterns."

"Late Night" host David Letterman had Microsoft founder and, at that time the richest man in the world, on his show for an interview in '95 to discuss the "the big new thing."

During the interview Letterman chided Gates about the usefulness of the new technology, comparing it to radio and tape recorders.

Gates seems excited by the internet because it will soon allow people to listen to a baseball game on their computer. To which Letterman smugly replies, "Does radio ring a bell?" to laughter from the crowd.

But Gates presses Letterman saying that the new technology allows you to listen to the game "whenever you want," to which Letterman responds, "Do tape recorders ring a bell?"

Gates then tells Letterman he can keep up with the latest in his favorite hobbies such as cigar smoking or race cars through the internet. Letterman shuts him down saying that he reads about his interests in magazines.

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The discussion ends with the two laughing over meeting like-minded people in "troubled loner chat room on the internet."

The clip brings to mind a 1994 segment on "The Today Show" where host Bryant Gumbel and Katie Couric have a similar discussion.

"What is internet anyway?" an exasperated Gumball asks. "What do you write to it like mail?"

"It's a computer billboard but it's nationwide and it's several universities all joined together and it's getting bigger and bigger all the time," a producer explains from off-stage.





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Photo by Li-An Lim on Unsplash

The future generations will have to live on this Earth for years to come, and, not surprisingly, they're very concerned about the fate of our planet. We've seen a rise in youth activists, such as Greta Thunberg, who are raising awareness for climate change. A recent survey indicates that those efforts are working, as more and more Americans (especially young Americans) feel concerned about climate change.

A new CBS News poll found that 70% of Americans between 18 and 29 feel climate change is a crisis or a serious problem, while 58% of Americans over the age of 65 share those beliefs. Additionally, younger generations are more likely to feel like it's their personal responsibility to address climate change, as well as think that transitioning to 100% renewable energy is viable. Overall, 25% of Americans feel that climate change is a "crisis," and 35% feel it is a "serious problem." 10% of Americans said they think climate change is a minor problem, and 16% of Americans feel it is not a problem that worries them.

The poll found that concern for the environment isn't a partisan issue – or at least when it comes to younger generations. Two-thirds of Republicans under the age of 45 feel that addressing climate change is their duty, sentiments shared by only 38% of Republicans over the age of 45.

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