Perthes Kids Foundation Builds Support For Survivors Of Legg-Calve-Perthes Disease

Perthes Kids Foundation aims to raise global awareness for children and families surviving Legg-Calve-Perthes Disease, in addition to developing research grants for new treatment methods, providing support for families, and promoting activities for children dealing with the disease.

Legg-Calve-Perthes Disease is a degenerative hip bone disorder (osteochondritis) that makes it painful to walk. It may not be life threatening, but it is life altering. As a child survivor of Perthes Disease, I spent a majority of my childhood in a cast, leg braces, and in a wheelchair. But I marched on through life to do amazing things despite my early physical challenges... like going on national TV and winning CBS' Survivor: Fiji in 2007, when I became the first unanimous winner in the history of the show, and which I dedicate my perseverance, humilility and determination to my experience with Perthes, first and foremost.

With great support from my family and friends I've never let Perthes defeat me as an individual. It is that support that also inspired me to establish Perthes Kids Foundation, to give back to families around the world dealing with Perthes Disease. Perthes Kids Foundation aims to raise global awareness for children and families surviving Legg-Calve-Perthes Disease, in addition to developing research grants for new treatment methods, providing support for families, and promoting activities for children dealing with the disease.

As the disease is typically found in 1 out of 12,000 children between the ages of 3-12, providing a support network for these children early on is critical. And so we started Camp Perthes, a one-week, overnight camp for boys and girls between the ages of 7-13, which just ended its third run. The Camp, which takes place in Florida, is the first and only of its kind in the world, and aims to promote confidence skills, social development, education and therapeutic activities where kids with LCPD can meet each other, in a fun and safe environment. Families travel from other countries just to attend. That's why, due to demand, we are organizing a Camp Perthes in Australia and the UK.

It is my hope that we can all connect with one another, help support each other and share our stories. Let's keep our kids inspired!

To learn more about Perthes Kids Foundation, I invite you to visit our website and Like us on Facebook.

Julian Meehan

Young leaders from around the world are gathering at the United Nations Headquarters in New York Saturday to address arguably the most urgent issue of our time. The Youth Climate Summit comes on the heels of an international strike spearheaded by Greta Thunberg, the 16-year-old climate activist from Sweden, who arrived in New York via emissions-free sailboat earlier this month.

Translated from Swedish, "berg" means "mountain," so it may feel fated that a young woman with Viking blood in her veins and summit in her name would be at the helm. But let's go out on a limb and presume Thunberg, in keeping with most activists, would chafe at the notion of pre-ordained "destiny," and rightly so. Destiny is passive — it happens to you. It's also egomaniacal. Change, on the other hand, is active; you have to fight. And it is humble. "We need to get angry and understand what is at stake," Thunberg declared. "And then we need to transform that anger into action."

This new generation of activists' most pernicious enemy is denial. The people in charge — complacent politicians and corporation heads who grossly benefit from maintaining the status quo — are buffered from real-life consequences of climate change. But millions of people don't share that privilege. For them, climate change isn't an abstract concept, but a daily state of emergency, whether it comes in the form of "prolonged drought in sub-Saharan Africa…devastating tropical storms sweeping across Southeast Asia, the Caribbean and the Pacific…[or] heatwaves and wildfires," as Amnesty International reportsare all too real problems people are facing on a regular basis.

RELATED: Greta Thunberg urges people to turn to nature to combat climate change

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The Planet

Millions of people in over 150 countries across the globe marched for lawmakers and corporations to take action to help stop climate change on Friday, September 20.

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"We need to act right now to stop burning fossil fuels and ensure a rapid energy revolution with equity, reparations and climate justice at its heart," organizers say.

There's no doubt the visual images from the marches send a powerful message to those on the ground but especially those watching from around the world. GOOD's own Gabriel Reilich was on the scene for the largest of the Climate Strikes. Here are 18 of the best signs from the Climate Strike march in New York City.

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via Apple

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