GOOD

Jen Brea

Articles

Raising Awareness About the Devastating Disease Your Doctor Has Never Heard of

One million Americans have Chronic Fatigue Syndrome, but the NIH spends five times as much studying male pattern baldness.


When I first got sick, it was the total coming apart of my body that preoccupied me. At the age of 28, in the space of less than two years, I went from being an ambitious doctoral student to a woman with a dizzying array of neurological and autonomic symptoms. Where I had once traveled the world as a freelance journalist, I could no longer leave my house.

What I did not notice until years into my illness, when I first decided to make a documentary film about my experience and the experiences of others living with Myalgic Encephalomyelitis, was that all the while, alongside my health, my identity and my dignity were gradually being taken from me.

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