He was a brilliant musician. Then, a virus contraction left him with a memory span of only 30 seconds.
In 1985, British musicologist Clive Wearing was struck with one of the most extreme cases of amnesia ever recorded. Diagnosed with herpesviral encephalitis, the disease destroyed his brain's memory-forming regions, leaving him with a memory span of just 7 to 30 seconds. Four decades later, a page from his diary surfaced online, revealing the mind of a man who struggled to remember anything. Yet, it also revealed the one thing Wearing always remembered: his love for his wife, Deborah.
Wearing's diary entry from January 13, 1990, recorded his daily observations every 4 to 5 minutes, each marked as "new." Despite his condition, one constant was his love for his wife, Deborah. He made efforts to keep her updated about his life.
His condition usually saw him forget half of his memories before he could finish an entry and hence had to start over again and again. He could not trust what he wrote and when he wrote it, which often led him to scratch out most of his entries. He wrote multiple entries that recorded his last conscious moment. In the diary, one entry denoting 7:46 am saw him write, "I am awake for the first time." It is followed by an entry at 7:47 AM, that read, "This illness has been like death till NOW. All senses work.”
Despite his extreme amnesia, Wearing retains a form of short-term episodic memory. He understands his immediate situations without knowing how he got there. Most amnesia patients experience only one form of the disorder at a time—either retrograde or anterograde.
Clive Wearing lost his entire episodic memory to illness. Although he’s “conscious” all day like anyone else, he constantly claims to be dead, unconscious & lacking all sensation. His wife shows him a video of himself playing music & says: “See? You’re conscious.” 1/3 pic.twitter.com/cJuIU90vOB
— Okay Egg (@yeastsplainer) May 21, 2024
Wearing's case is rare in this respect, as he experienced both forms of amnesia simultaneously. He suffered from the most extreme case of anterograde amnesia ever recorded, per Study.com. Since he cannot retain any new information and lives in a perpetual state of confusion, he was shifted to an assisted living facility where he receives the help he needs.
This is a picture of Clive Wearing’s diary. In 1985 he contracted contracted a herpes simplex virus that attacked his central nervous system.
— Morbid Knowledge (@Morbidful) June 3, 2024
Since then, he has been unable to store new memories. He has also been unable to associate memories effectively or to control his… pic.twitter.com/349CUQT2WS
Despite his severe memory loss, Wearing remarkably retains two things: his love for his wife and his passion for music. He knows he was a musician but can't remember playing or hearing music. Tragically, he knows he has children but can't remember their names.
British musician Clive Wearing suffers from one of the most severe case of amnesia ever known. The duration of Clive’s short-term memory is anywhere between 7 seconds and 30 seconds. pic.twitter.com/WlzpPwtARp
— Time Capsule Tales (@timecaptales) February 11, 2024
Wearing's wife Deborah has been through thick and thin since his diagnosis. She teamed up with the Amnesia Association to give the NHS recommendations on how to help and rehabilitate those with brain injuries, per Historic Flix. In her book "Forever Today: A Memoir Of Love And Amnesia," Deborah talks about the reality of their situation and how the disease affected their lives. She describes it as a "story of a life lived outside time" and a "story of a marriage, of a bond that runs deeper than conscious thought."
In an interview with The Guardian, Deborah summed up her thoughts on her husband's rare condition. She said, "I realized that we are not just brain and processes. Clive had lost all that and yet he was still Clive." She added, "Even when he was at his worst, most acute state, he still had that huge overwhelming love… for me. That was what survived when everything else was taken away."